Advice & Support
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Living with Incontinence

The Psychological Impact of Incontinence

Incontinence doesn’t just present as a physical condition; the emotional and psychological impact can be significant and have a ripple effect on family carers.
Published by Jane Granger
The Psychological Impact of Incontinence

The Emotional Toll of living with Incontinence

Incontinence can have a significant emotional impact, both for those experiencing it and their carers. Often linked to ageing, disability, or illness, incontinence can trigger feelings similar to the stages of grief, including denial, anxiety, frustration, anger, and even depression. Recognising and managing these emotions is key to improving the quality of life for everyone involved.

The Psychological Impact on Those with Incontinence

Incontinence can lead to feelings of rejection, social isolation, dependency, and a loss of control. A person’s body image may be affected, especially if they feel embarrassed or ashamed about their condition. Without effective management, these feelings can become more intense, potentially leading to social withdrawal or avoidance of everyday activities.

Research shows that many people with incontinence do not seek help. For some, it may be easier to deny the issue, while others might try to hide it. This reluctance can be difficult for carers to understand, but it’s important to remember that denial and embarrassment often stem from deeper fears or misunderstandings about the condition. Some people incorrectly assume incontinence is a natural part of ageing, or a result of childbirth or surgery, and therefore believe nothing can be done.

When discussing continence care, it may take time for a person to open up about the full extent of their challenges. As they grow more comfortable with healthcare professionals, they may become more willing to explore treatment options. Read more about the emotional stages on the Continence Foundation of Australia’s website.

Anxiety, Frustration and Anger

Anxiety is a common emotional response to incontinence, largely due to the fear of embarrassment. Many people may worry about leaks or odours in public, leading them to avoid social activities, isolate themselves, or even restrict their diet and fluid intake to prevent accidents.

For both the person with incontinence and their carer, frustration and anger are natural reactions. A person may feel helpless if they struggle to manage their incontinence, while carers may feel overwhelmed by the demands of continence care. Lack of sleep, stress, and exhaustion can take a toll on relationships and overall wellbeing. If frustration and anger become frequent, it’s important to seek support from a healthcare provider. Sane Australia provides tips for family carers managing mental health issues related to incontinence.

Recognising Depression

Depression is another possible emotional response to incontinence, especially when a person feels they’ve lost control over their body. Carers should watch for signs of depression, such as feelings of hopelessness or withdrawal from usual activities. If you suspect the person you’re caring for may be depressed, or if you’re feeling this way yourself, contact a doctor or mental health professional. Beyond Blue offers practical advice on starting a conversation about emotional wellbeing.

Caring for Yourself as a Carer

Caring for someone with incontinence can be physically and emotionally demanding. It’s important to recognise your own feelings and seek support when needed. Stress, exhaustion and feelings of being overwhelmed are common, but ignoring these emotions can affect your ability to provide care.

Remember to take care of yourself. Find ways to rest and connect with others. Access support services when necessary, here in New Zealand, Carers New Zealand and ContinenceNZ offer valuable resources and advice for those looking after those with incontinence.

Practical Tips for Managing Incontinence

Management of incontinence can improve emotional wellbeing for carers and those they care for. Here are some practical steps to help:

  • Get professional advice: Consult a doctor or continence nurse.
  • Medication and treatment: Explore the options of medication with a healthcare professional.
  • Encourage physical activity: Aim for 30 minutes of exercise each day to promote overall health.
  • Focus on a healthy diet: Encourage eating fresh, nutritious foods and drinking at least 1.5-2 litres of fluid daily.
  • Maintain a healthy body weight: Help the person achieve and maintain a healthy body weight to reduce incontinence-related issues.
  • Limit unhealthy habits: Discourage smoking and limit alcohol and caffeine intake, as these can worsen symptoms.
  • Promote good sleep habits: Ensure both you and the person you care for get adequate rest to maintain emotional and physical health.

Managing incontinence is not just a physical challenge - it comes with a range of emotional impacts that affect both the individual and those caring for them. Recognising these feelings and seeking support is important. Remember, you don’t have to navigate this journey alone. There are resources and people available to help you along the way.

For more information on incontinence and support available, visit Carers New Zealand or ContinenceNZ.

Essity Australasia makes no warranties or representations regarding the completeness or accuracy of the information. This information should be used only as a guide and should not be relied upon as a substitute for professional, medical, or other health professional advice.